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Working together to improve the lives of patients and families affected by Developmental Synaptopathies

 

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Participants make it possible for researchers to find new treatments, speed up diagnosis, and improve the lives of those affected by rare diseases.

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Rare Research Report: January 2025

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Join the RDCRN for FDA-NIH Rare Disease Day, February 27-28, 2025

Don’t miss the in-person and virtual celebration of FDA-NIH Rare Disease Day on February 27-28, 2025.

FDA-NIH Rare Disease Day. February 27-28, 2025

Rare Research Report: November 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Learn More About Developmental Synaptopathies

Access educational materials, frequently asked questions, lectures, and more.

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