Resources for Patients and Families

The TSC Alliance, a nonprofit organization working to improve the lives of people with tuberous sclerosis complex (TSC), offers helpful guidance for navigating educational and school-related issues, including numerous excellent publications to share with your child's teachers.

The Center for Parent Information and Resources is a central hub of information and products created for the network of Parent Centers serving families of children with disabilities. Resource sheets list every special needs organization by state, including up-to-date contact information.

The Massachusetts Department of Education offers a wealth of information for parents regarding the special education process, as well as parents' rights. Other states have similar sites.

The Federation for Children with Special Needs is a parent advocacy and information group workng to to provide information, support, and assistance to parents of children with disabilities. They are located in Massachusetts.

The Special Needs Advocacy Network lists all of the educational advocates and special needs lawyers in Massachusetts.

Autism Speaks provides great resources and suggestions including apps for children with autism.

Disability Law Center is the Protection and Advocacy agency for Massachusetts. DLC is a private, non-profit organization providing low cost or free legal advice for Massachusetts residents with disabilities.

Provides excellent information about learning disabilities and how to support a child with learning differences.

LD Online is the world's leading resource on learning disabilities. The website offers a wealth of materials, including articles, multimedia, monthly columns by noted experts, first person essays, children’s writing and artwork, a comprehensive resource guide, very active forums, and more.

Today Parenting Team contributor Elizabeth Montgomery shares a list of exceptional twitter accounts that share resources for families of special needs children.

PTEN World is a blog and discussion forum dedicated to supporting patients and families affected by PTEN hamartoma tumor syndrome (PHTS), Cowden syndrome (CS), and Bannayan-Riley-Ruvalcaba syndrome (BRRS). Individuals are welcome to register for membership to participate in this bustling online community.